Authorization

New Patient-Centered Research Agenda for Personalized Medicine Outlines 45 Questions Across Nine Areas With Emphasis on Improving Education, Access

}

WASHINGTON, Aug. 21, 2020 /PRNewswire/ -- Following two years of discussions with more than 120 health care stakeholders comprised predominantly of patients, caregivers and representatives from patient advocacy organizations, the Personalized Medicine Coalition is pleased to release a new patient-centered research agenda for personalized medicine that defines 45 research questions for the field across nine areas of special concern for patients themselves. By aligning the focus of future research in the field with questions defined by patients and their representatives, the report, titled Moving Beyond Population Averages: A Patient-Centered Research Agenda Advancing Personalized Medicine, may guide health systems toward a new era of patient-centered personalized medicine.
New Patient-Centered Research Agenda for Personalized Medicine Outlines 45 Questions Across Nine Areas With Emphasis on Improving Education, Access
Reflecting on their encounters with the health care system and their perspectives on personalized medicine, the participants in the project focused largely on their desire for research that could improve the quality and quantity of interactions between patients and providers of health care services, with an emphasis on the importance of education and access. Their research questions were designed to address concerns specifically related to:

Patient-provider communication;



Patient education;



Caregiver, pediatric and family considerations;



Provider education, resources and collaboration;



Access, affordability and utilization;



Coverage and reimbursement;



Clinical trials;



New technologies and data management; and



Outcomes research.

"Studying the questions outlined in this research agenda will bring us one step closer to an era of personalized medicine by revealing how health care decision-makers can work even more closely with patients to develop prevention and treatment strategies that are tailored to patients' biological characteristics, preferences, values and circumstances," said Edward Abrahams, President, Personalized Medicine Coalition.The report was funded through a Patient Centered Outcomes Research InstituteA® (PCORIA®) Eugene Washington PCORI Engagement Award (10438-PMC). Participants in the project represented diverse backgrounds, disease areas and health needs, and had varying levels of experience with personalized medicine. Participants from outside the patient community included health care professionals, researchers and others with an interest in advancing the field.
See also:
Leave a comment
News
  • Latest
  • Read
  • Commented
Calendar Content
«    Январь 2021    »
ПнВтСрЧтПтСбВс
 123
45678910
11121314151617
18192021222324
25262728293031